The Gene Guillotine: An Early-Onset Alzheimer’s Memoir   Buy Book   

Media

Below is the list of media outlets that have featured the way my family is affected by early-onset Alzheimer’s disease:

Featured in the Mail Tribune, “Author sees grim 50-50 chance,” Jan. 20, 2013.

Her Circle e-zine featured a “Q&A with Kate Preskenis, Memoir and Memory” on July 28, 2011.

CNN’s documentary “Filling the Blank” produced by Felipe Barral is about research and hope for early-onset Alzheimer’s both in Colombia and the United States.  It was filmed by cameraman Greg Kilday. They interviewed my family and me in September 2010. Watch the trailer. There are four parts to the documentary. Part 1 –Alzheimer’s disease: Fear and Hope. Part 2 –Groundbreaking Alzheimer’s Study. Part 3 –Waiting and Worrying. Part 4 –The Search for an Alzheimer’s cure.

Minnesota Public Radio invited Dr. Creighton Phelps (the director of the Alzheimer’s Disease Research Centers Program at the National Institute on Aging) and me to be guests on Kerri Miller’s Midmorning call-in talk show about early-onset Alzheimer’s disease on August 31, 2011.

On November 10, 2010 Carla Delandri of ABC ’20/20′ updated the profile of my family after the death of my Uncle Butch(Malcom) Noonan titled Early Alzheimer’s Disease: A Family’s Legacy.

The book The Alzheimer’s Solution: How Today’s Care is Failing Millions—And How We Can Do Better by Kenneth S. Kosik, MD, and Ellen Clegg includes our family in the discussion.  A webpage, The Noonan Family Saga, is an interview by Ellen Clegg with my aunt, Julie Noonan Lawson.

Our family is featured in the book Decoding Darkness: The Search for the Genetic Causes of Alzheimer’s Disease, written by Rudolph E. Tanzi and Ann B. Parson.

The Forgetting: A Portrait of Alzheimer’s is a television documentary by PBS and TPT (Twin City Public Television) based on David Shenk’s book The Forgetting, and includes my aunts and uncles Fran Noonan Powers, Julie Noonan Lawson, Butch Noonan, John Noonan, Eryc Noonan and Steve Powers.

Fran Noonan Powers, my aunt,  who had Alzheimer’s disease, was featured on a segment of the 20/20 television series with Lynn Sherr called Early Alzheimer’s Disease: A Family Legacy Part 2 in 1996.

Eight of ten Noonan siblings were interviewed by Lynn Sherr in an ABC 20/20 segment called Early Alzheimer’s Disease: A Family’s Legacy in 1996.

The Leeza show interviewed Maureen Noonan Preskenis and in a different episode Fran Noonan Powers with Julie Noonan Lawson in 2000.

Channel WBZ 56 , a local Cape Cod television station, produced segments that aired during their evening news that featured the Noonan siblings facing Alzheimer’s disease.

In 1997 John Noonan and Eryc Noonan, my uncles, started the Memory Ride, a New England bike ride to raise money for Alzheimer’s research.  Research doctors have participated and spoken at the Memory Ride’s yearly events.

Fran Noonan Powers spoke in front of Congress in 1995 to request more funding for Alzheimer’s research.

Julie Noonan Lawson spoke in front of Congress in 2005 to request more funding for Alzheimer’s disease.